There are a number of self help groups available and I've listed some that you can contact who will be able to give you advice and help, although many of them deal with all types of allergies, they do have members and advice for those of you with LI. Why not contact them, they are run by volunteers, so please be patient and remember to send a stamped address envelope at all times.
For
Parents by Parents www.forparentsbyparents.com looks at all the life
changing elements of parenthood, even the grim bits...so we hope that it truly
reflects the reality of being a mum or a dad today. Through the sharing of personal
experiences, parents offer support, reassurance, information, ideas and practical
solutions.
The No-Milk Page
An excellent site full of information. Also plenty of links (some reproduced
here), but bear in mind most of the information is US based. The site also has
an excellent mailing list service. How to join the
mailing list
Lactose
Net A comprehensive set of links. No special information but a site
that's worth a visit.
Kirsten's Lactose Free
website Plenty of American information and advice on Lactaid, take
a look and see what's available in the States but not over here.
Hymie's
Lactose Intolerance Headquarters Another great US site and well worth
the visit. Hymie also has an e-mail page for people to ask him questions.
Steve
Carper's Lactose Intolerance Clearing House This site has recently
been updated and is well worth a visit. Steve wrote the book Milk is not
for everybody: living with lactose intolerance.You can buy the book from
the Dairy free Bookshop Click here for the
shop's front door
Food
Allergy Survivors Together Another interesting group of people who
produce a mailing list. The group deals with all food allergies and can be useful
to visit.
Food
Allergy Network Although this site is not solely about LI it is well
worth a visit and is full of information and especially food alerts. Do visit.
Lactose
Intolerance Page (L.I.P.) A nice site with plenty of information.
However due the pressure of work the site has had to drop it's mailing list
and will not be updated as regularly as it once was. Do have a look though.
Children
with milk, egg and other food allergies This site starts with a personal
experience but then moves onto plenty of information not just about milk intolerance
and allergy but also other food allergies.
Milk
alternatives An interesting site that looks at how to make alternatives
to cow's milk. The site is aimed at beating the milk subsides in the US but
the information is useful.
Dodging
dairy: handling food allergies This is dated May 1995 from the San
Diego Earth Times. The page talks about alternatives to dairy products including
cheese, milk, etc. Most of the information is around on this site as well as
others.
Lactose
Intolerance This site is part of the National Digestive Diseases
Information Clearinghouse. This is a site worth visiting for basic information
and often repeated on other sites, but here is the original.
ADHD and Living
Milk-Free This site is for people who are celiacs, however it is
full of useful information on milk intolerance as related to celiacs. If you
suffer from wheat and milk intolerance take a visit.
Teens With Crohn's
Disease This is an excellent site for teenagers with Crohn's Disease.
It's full of useful information, recipes, and a chat room.
Parents of food allergic kids
This link will take you to One list a e-mail group you will need to sign up
to an excellent group called Parents Of Food Allergic Kids or POFAK. Just follow
the instructions when you get to the site. The Group deals with all allergies
and there is a lot of mail sometimes, you can select digest which will give
you a condensed form of the day's mail. They are mainly US based but the members
are from all around the world including the UK. The moderator is also starting
a newsletter. The site also lists a couple of other email groups so you may
want to sign up to them also. Type food allergy in the search box for the list.
Lactose-Free Lady
This site belongs to the author Sheri Updike who wrote "The Lactose-Free Cookbook"
Sheri's book is available in the UK and the information on the site is excellent.
Do visit.
Spanish Medical
Translations This is a new link to an excellent medical translation
site dealing with all aspects of health and useful for those about to holiday
in a Spanish speaking county.
No-dairy.com
This US site offers mail order dairy free products, recipe pages. This site
for those people who are not near a ready supply of dairy free products coveing
soups and desserts to althernative meals and cheese substitutes. Do visit for
more information if you live in the continental USA.
The Mind-Body Digestive
Center The site has a lot
of resources and information on the mind-body link of digestive disorders such
as Irritable Bowel Syndrome, and many other diseases including women's health
issues and Fibromyalgia. Their treatment protocol looks at the experience and
meaning of having IBS in a person's life. We are concerned with how the mind and
the body are linked, including IBS symptomatology, family background, current
relationships and ongoing sources of life stress.
DFO-Nutrition Services Well as a departure from goat's milk and soya milk here is a site from the Dairy Farmers of Ontario. The site talks about lactose intolerance and milk allergies from a pro cow's milk point of view.
Danone Newsletter This site is produced by the French company Danone who
make a range of yoghurts. The site has some useful information on various milk
related topics. Use their search engine for best possible coverage of the
newsletters.
National Society of Research into Allergy PO Box 45, Hinckley, Leics
LE10 1JY
The society produces a range of booklets and plenty of advice on all forms of
allergies and where to get hold of a range of elementary foods and digestive
enzymes by mail order. And a list of local allergists.
Allergy Induced Autism 3 Palmera Avenue, Calcot,
Reading, Berkshire, RG31 7DZ. Tel.: 01189 419460.
Office hours are Monday to Friday 9.30 am - 3 pm. Also can be contacted through
their web site Allergy
Induced Autism.
Genetic Interest Group Unit 4D, Leroy House, 436 Essex Road, London
N1 3QP. Tel: 020 7704 3141, Fax: 020 7359 1447
This group deals with genetical caused illness. GIG have a database of individuals
and groups that are available to give you help and advice on genetic disorders,
a very useful site. GIG site or email mail@gig.org.uk
Anaphylaxis Campaign PO Box 149, Fleet Hampshire, GU13 9XU, UK Tel.:
01252 542 029 Fax.: 01252 377 140.
Please remember to send a large stamped, self-addressed envelope for more information.
There is also a web site Anaphylaxis
Campaign on milk allergy. The link will take you to the section dealing
with milk allergy, you can then travel around their site. Do visit it.
Food and Chemical Allergy Association This is a small volunteer organization,
please contact your local UK library for their address.
The organization deals with all forms of chemical and food allergies and
advice is readily available mainly in the evenings and weekends. Sorry but no
address is available over the net as the organization is run by a small group
of volunteers and they can't cope with international enquires.
Action Against Allergy PO Box 278, Twickenham, Middlesex, TW1 4QQ
Fax: 020 8892 4950 AAA@actionagainstallergy.freeserve.co.uk
The organization produces lots of information about all forms of allergies and
also where to find the nearest allergy clinic, NHS/private specialist and specialist
State Registered Dietitian. They also produce a very informative newsletter.
Again this is a small charity run by volunteers please if you write to
them send an SAE. Membership is £UK10 per year and they provide an excellent
newsletter 3 times a year. The AAA also provide information packs on a number
of subjects at UK£2.00 each and a suppliers list of health and home care products
for allergy suffers at UK£2.50 (inc.P & P). They also produce a very comprehensive
book list for all allergies and they are available from Merton Books PO Box
279 Twickenham Middlesex TW1 4XQ
Hyperactive Children's Support Group, 71 Whyke Lane, Chichester,
Sussex. PO19 2LD. Tel: 01903 725182 Fax: 01903 734726. For hyperactive,
allergic and learning disabled children. Visit their site Hyperactive
Children's Support Group.
Medic-alert Foundation 1 Bridge Wharf, 156 Caledonian Road, London
N1 9UU. Tel.: 020 7833 3034. Freephone 0800 581420
This foundation, for those who don't know, supply bracelets and necklaces
which will give a warning about your allergy, and is especially useful if you
suffer extreme reactions to any dairy product or if you are anaphylactic.
The bracelets cost £30.00, however, the foundation is supported by the Lions
Organization and if you live in the British Isles or Ireland sponsorship is
available for those on limited income to obtain a bracelet.
The
Yellow Cross Company WW Unit 1, 5 Highclere Road, Knaphill, Woking, Surrey
GU21 2PN. Tel/Fax 01252 332005 www.yellowcross.co.uk
to email contact them on info@yellowcross.co.uk
This company produces a range of safe and secure travelling containers for personal
medicines, particularly for medicines required in emergency situations and for
those needed on a regular basis. Refrigerated medicines can be kept cool for
long periods of time in our Ultimate Coolbag which can also provide for special
diets and they also produce a range of translation cards to help explain your
allergy in a range of languages, ideal for those holidays abroad.www.translationcards.co.uk/
Kidsaware
P.O. Box 115, Bedford. MK44 2FA Tel: 01480 869244 Fax 01480 861 143 email:
sales@kidsaware.co.uk
Kidsaware, sells a range of products aimed at helping young
children with nut allergies avoid contact with nuts. Products include t-shirts,
sweats, stickers, caps, badges and
bags. The items carry slogans such as "Have a nut free day" and
"Nut Free Zone". They have also recently introduced stickers for
children with milk, egg and other allergies as well as bags suitable for carrying medication
that can be personalised.
British
Goat Society34-36 Fore Street, Bovey Tracey, Newton Abbott, Devon TQ13
9AD. Tel.: 01626 833 168. Registers all goat milk products in the UK and
all herds.
Cirval. This is a French
based site looking at all aspects of goat and sheep husbandry and milk production
and products from small ruminants.
Cirval.This page has been visitedtimes
since 3 March 1998. Thanks for the support.