There are precautions that can be taken to reduce seizures and the risks from seizures. These measures should be discussed with the GP and/or specialists involved in the treatment of epilepsy. The following is a guide to the appropriate areas for discussion:

Diagnosis should be confirmed and appropriate treatments established as soon as possible. This is best done by a specialist with a particular interest in the condition

A management plan should be established ensuring regular review of seizure control, accuracy of diagnosis, medication, side effects and impact on lifestyle

Trigger factors for seizures should be identified and avoided

Adherence with medication is important

Safety Measures in Seizures

There are a number of safety measures relevant to seizures. These relate to driving, avoidance of high-risk situations (heights, waterfronts, fires) and normal safety at home measures e.g. showering rather than bathing. In addition, because seizure control is important, the following are important :

Avoiding sudden changes in the taking of medication

Avoiding or limiting alcohol intake, by avoiding both excessive daily intake and binge drinking

Avoiding recreational drugs

The benefits of healthy living including regular sleep and diet and reduction of stress

Pre conceptual counselling for women

Where seizures are nocturnal - it may be preferable to have a futon or other bed, which is low on the ground. A solid foam pillow with air holes may be advised, although these have not been tested. There has been no independent research on sleep monitors, but if an individual asks for information this is obtainable from epilepsy organisations

Make sure family and carers are informed of what to do during and following a seizure. In particular, carers should be advised to stay with a person for 15-20 minutes after the seizure to ensure they are breathing easily and to watch that they are not turning blue. An ambulance should be called if the seizure lasts more than five minutes or they are unduly concerned.

Where risk factors of SUDEP are present carers should have a basic knowledge of resuscitation techniques

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Written for Epilepsy Bereaved by Fenn-Smith Solutions
© Epilepsy Bereaved 2000