Champion the issue of sudden death in epilepsy, previously unacknowledged by any organisation.

Produce a regular news magazine and information on SUDEP.

Provide a range of support services to bereaved families.

Produce and distribute a free booklet:  "Epilepsy and The Young Adult".

Produce "SUDEP Awareness in Primary Care - A Guide for GP's and Members of the Primary Health Care Team".

Collaborated with the Epilepsy Research Foundation to fund the first two medical research fellowships into SUDEP and established a research fund for projects on its prevention.

Conceived and organised the first major international gathering of scientists to address the issue of SUDEP (1996), leading to an international medical research publication in 1997.

Gained funding in 1999 for a national audit of epilepsy-related deaths.This study will help to set standards for epilepsy services and investigation of epilepsy-related deaths, and will identify areas for preventative research.

Obtained the British nomination for 1999/2000 for an international award for services to people with epilepsy.